I'm not trying to be harsh and would love to hear some good experiences concerning the Mount. But ours, and a few Hopkins friends, have had no such luck.
I also should have known that we wouldn't have any news this morning. I didn't realize that it would be a tech doing the study and not a nurse. Nothing wrong with that, just my oversight. But they aren't allowed to tell you anything about anything I guess because they aren't 'qualified'. So we come away today knowing only what we already knew which was that if you turn the oxygen off he starts to desat and work really hard. Not surprising. The doctor should have the results when we see her next week. I think it will be interesting to see the correlation of how fast/slow he breaths and the state of sleep he is in compared to when he is desating or not.
|Isn't he adorable?|
|He wants to kill.|
FINALLY around midnight after rolling and crying and fussing and rolling he fell asleep. DON'T TOUCH HIM.
He basically slept through the night at that point. Thank the Lord because I was crawling out of my skin and ready to unplug him and get the heck home.
I don't know why we have issues there. I can honestly say that I went into the evening with a fresh view and an open mind. I wasn't holding anything against them. Maybe they aren't used to children quite as complicated as Theodore. Maybe we are just lucky enough to meet all the less-than-good employees there. Either way, our experience was once again sub par.
Now we're home. They let us go a little early so we were able to beat rush hour traffic. After an hours nap and a few cups of coffee I think I can tackle today. They said they were able to get the results they needed so hopefully we can put off another sleep study. At least for a year or so.
And for those wondering: Yes, I did get the bed. (which was actually a bed and not an extend-o-chair.) I got to sleep. Maybe only for 2 1/2 hours but I DID get to. I told you I would win. Ben might say it's because he's on night shift and was going to stay up anyway. To that I say, that's exactly how I won -I'm a master planner. Yes, hon, whatever makes you feel good about it. Of course you let me sleep.
I haven't forgotten about the videos I said I would post. Just haven't gotten the chance to work on them. And, BIG NEWS PEOPLE! Israel can now feed Rambo. He knows how to do everything from fill the bottle to plugging Rambo in!! So exciting. He is so proud of himself as he should be.