Sunday, April 29, 2012

Static.

I'm sure I've mentioned before that sometimes all that goes through my head is static. Ben wonders how I can ignore the constant 'mommy' calls from 3 different children. Static. It's easy, really. And somehow I can still decipher between one that truly needs attention and one that doesn't, or the hacking/gurgling from Theodore that really means he needs suctioning and the one that's just noise. It's a temporary break from reality that can instantly be gone the second I sense trouble.

I don't know why I feel so inclined to write this because I'm not sure how it fits into what I'm going to say. But there you have it. Information for the general public I guess. Which I'm sure will be used against me one day. 

I really have no direction for this post. It's been a good week on the whole. Busy but good. My mind just isn't cooperating with me. I feel like there's a lot I want to say but can't form it into anything sensible (hence the first two paragraphs.) So bear with me as I sloppily give you some info in no particular order.

Rambo is doing much better! Yay! Tomorrow will be his last day of antibiotics and they kicked whatever he had right out of him. Woot!

He's learned something new:


He obviously didn't get like that himself, but he did hold himself there for as long as his legs were locked. I'm not sure how standing like that's going to benefit him.... Watch, he'll probably end up walking around like that instead of crawling. Just my luck. It would be hilarious.

Actually, he's learned two new things:


Yeah.... that's a lot of fun... going for the electronics. Every kids dream. Every parents nightmare.

I have cancelled two appointments for him in the last two weeks. I just couldn't talk myself into getting ready for them. He was sick and the weather was bad so thankfully I got to use that as an excuse. But this does kind of make me feel like a bad mother..... 

The puppy is doing really well and much better at the house training. Not perfect, but better. He's also growing extremely fast. I look at him and see a full grown German Shepherd sometimes. Crazy. 

I know there was something else I was going to say, but I can't think of it right now. I'm going to go ahead and post this before I reread or second guess it and delete it all. 

Enjoy my scatter brained-ness.... or not. 

Monday, April 23, 2012

Finger down!

I am currently typing this minus my left pointer finger. I had a run in with a rather sharp knife whilst I was slicing bread. Of course, short of choking to death, this is one of my biggest fears. And of course, we had just gotten back from a doctors appointment, everyone was hungry, the dog needed to go out (yes, we got a puppy) and I was feeling slightly stressed. Anyway, I think now there was maybe no need for me to go wake up Ben who is on night shift and say "I cut myself!!!" But it was only when he looked at it and said, "Amanda, just put a band aid on it," that I realized it wasn't as bad as I had pictured. Oh well. 20/20 hindsight. I hope you were able to get back to sleep, Ben.

All that to say, it's taking me a little longer to type this with a lobster claw on the end of my hand. But none of this is really important. 

First things first... we got a puppy. This could be considered by some as a dumb move because of our current situation. They could be correct. But... look at him!!!


He's so cute!! Who could deny him??? Plus, it helps that he's wonderful and snuggly and playful. Also, not chewing on any of Theodore's wires has played to his advantage. It does not help that he has yet to be house trained, but what can you do? He really is a very good puppy and already a part of our family.We love him!!


Secondly, before the last few days of rain, we were enjoying the sunshine for all it was worth. For the very first time since being home, I was able to take the kids to the park!! The nurse was here with Rambo and the other 3 and I went to slide down slides and swing on swings. Side note: I am not as young as I used to be. 





They had tons of fun just in case you couldn't tell by their swing induced drunk faces. Also, Israel lost another tooth - not at the park, but the picture reminded me. It wasn't until he came down in the morning with the tooth in his hand and a look of disappointment on his face that I remembered to tell him that sometimes the silly tooth fairy runs behind. It wasn't that he was forgotten. Especially if you lose your tooth right before bed - you get put at the bottom of the list. It takes her a while to make her rounds. Just remember that, kids. But by midday, he had his money and life could once again be joyful.

Thirdly, we got a survey in the mail about our last outpatient visit - you know, the one where they sent us home because they miserably failed. So that should be fun to fill out. 

Fourthly, Theodore is fighting off tracheitis AGAIN. They almost sent us to the hospital, but thankfully my mom was able to drop what she was doing so we could see his pediatrician where we talked them into sending us home on an antibiotic promising to call if anything changed. Today he is doing much better.

Fifthly, it's my dads birthday. He loves lots and lots of attention on his birthday - like phone calls, and cards and just popping in unannounced so be sure to drop him a line. You're welcome, dad. And happy birthday!!!


And lastly, but possibly most importantly, I had every intention of writing a special post on April 18. Why?  Because that marks exactly one year since we've been home. One year!!! I was counting down the days until I forgot. Then I realized 4 days late that I had missed it. Mom of the year award goes to me! So, no special post now. The time has passed. But I will say that one year ago I never saw myself where I am today. God has blessed me abundantly and I can never thank Him enough. Although, I'd like to never have a year again like this past one if it can be avoided, we as a family will never be the same- in a good way.





   

Sunday, April 15, 2012

Loose ends.

I'm finally sitting down to tie up two loose ends from some prior posts. I know that you all have been losing sleep over it and I apologize that it has taken me so long.

1) The third and final movie line was: It wasn't easy! from Big Trouble in Little China. If you haven't seen the movie, don't worry, you really aren't missing much. 

2) Concerning my first ever quiche- yeah, you need a pie crust to make one of those. Who knew??

Have a lovely Sunday, everyone!

Wednesday, April 11, 2012

Only us.

I wonder how these things happen. I really do. Just when you think you have all your bases covered a snake comes from no where and bites you in the butt....or something like that. Today was Theodore's ear procedure. Cue 3:30am and I'm stumbling out of bed to immediately make a pot of coffee- is there really anything else you should be doing at that time of morning, you know, besides sleeping? Somehow I accomplish that, manage to make breakfast and get out of the house without forgetting anything by 4:30am. Thanks largely in part to our nurse and the aforementioned coffee. This is a miracle to me considering the last time we left for Hopkins I completely left behind the suction machine. The second most important thing. That is what early mornings do to me. And even though I was forgetting mid walk what I was walking to get this morning we still made it out incident free. Cue 5:50am. Arrive at Hopkins and get literally the best parking spot of all time. Check in upstairs then downstairs and wait. Finally get called back to pre-op/recovery area and get all settled in. His nurse comes back after awhile and starts asking questions. It was only then they realize he's on continuous oxygen to which she says "Oh, we don't do surgery on people on oxygen." Well, that would have been really freaking good to know 3 hours ago, lady! After double checking she tells us they absolutely can not do it because they just aren't prepared in the outpatient center for that. He would have to be admitted to the main hospital and have it done there. She puts a call into the doctor to see if he can have it done today as an inpatient. What are the chances of that happening? Exactly. Not good. So we turned around and came home. So here's my question: HOW in the world does something like the fact that he is on oxygen slip through the cracks like that??? Especially since one of the doctors doing one of the procedures today has known him SINCE BIRTH. And we set up the appointment through her because the audiologist couldn't set it up through her office because HE'S ON OXYGEN. After the nurse got ahold of the doc she said that she wasn't aware of that protocol. You can believe that if you like. Why do they insist on getting all your paperwork at least 24 hours ahead of time if they aren't even going to look at it? If they had then they would have seen his stats and we could have been called instead of wasting a trip. But no. They did give us a parking coupon and a $10 gas card as recompense. That'll do, pig. I suppose. So Ben and I have been walking around in a sleep walking state all day. I guess missing out on 4 hours sleep isn't THAT big of a deal... Needless to say, no more answers. Oh well.

Thursday, April 5, 2012

Are you serious, Clark?

Yes. It's true. I have to unfortunately admit that the sea monkeys are 10-7. But here's the thing: they must have been defective. I'm not kidding. I followed the directions to a T. TO A T! Down to the temperature of the water. Here's where things went wrong I think - Step 3: Feeding the Sea Monkeys. I quote "Do not feed sea monkeys until Day 5 after they have hatched." Day 5. Everywhere I looked (on all the packets, the website even) it was made clear to not feed them until day 5. Day 4 we have about 15 sea monkeys swimming around. I thought that things were going pretty well. Day 5 - all dead except 1. We feed the 1 left swimming - dead the next day. 

Right now there's a sea monkey grave in my kitchen. Don't worry, I'm going to try again. We will try until we get it right. This time I will feed them when I see fit though. No more following directions. 

On a similar, but not really, note. A few of you came close to getting the movies in last weeks post. But only Ben found the third one. It is the hardest to find I admit. And considering there is absolutely no reward for finding them I don't expect you to go back and pour over it until you do - unless you're a Taylor. So I'm going to give you a little more time. But here are the answers to the first two: #1) The obvious one. "Are you serious, Clark?" - Christmas Vacation. #2) Bootstraps' bootstraps. - Pirates of the Caribbean. (and shame on you to anyone who didn't say it the way they do in the movie). A hint for number three: It is after both of those and it is not in quotes. Happy hunting for the two who go back and look.

Now onto things that actually matter. Yesterday Rambo sat himself up! Twice! It was a very wide leg spread and a lot of leaning forward, but he did it himself!! I'm so proud. And also sad. But mostly proud. He's getting so big.

Next week he goes in for a sedated procedure. They are going to possibly drain the fluid (if there is any) out of his ears and put tubes in (if they are needed). Then they are going to do a hearing test and we will finally have definitive results on how much he can hear. (That's what they say, anyway, but we know how that goes.) We should be going home the same day, but I'm feeling a little nervous about the whole thing. Expecting good things though!

He also had a really good night last night. The first in a while. No coughing or desating. Yay! It was probably an isolated incident, but we'll take it. 

Okay... I'm going to attempt to make a quiche (first one ever... I know - sad) for breakfast. Let's hope this turns out better than the sea monkey thing.