Wednesday, May 1, 2013

Interesting fact.

Or depressing, depending on how you look at it. 

Last year, counting ONLY trips to and from Baltimore for Theodore we travelled over 3700 miles. 

That's a trip across the country. Except we only got as far as "Charm City". Barf. It's like we're in some crappy twilight zone dimension and we can't seem to break free. 

If we were to include all the local trips we made for Theodore we would be WELL over 4000 miles. 

The boy is cute, I'll give him that, but seriously?? It's a good thing he has a dynamite smile. 

This year is working out a bit better. Mostly because I've just been putting off all of his appointments. I can't take it anymore, people. Every time we go we answer the SAME questions and get the SAME information back. It's all starting to seem quite pointless. And to travel an hour and a half for a 15 minute appointment. UGH. Last year, he was a bit more precarious and actually had some issues to work out. This year he is holding steady so to see a doctor is purely for them to look at him, say what we already know "Yup, nothing's changed," and then pack up and head home. His health is absolutely important to me. But my sanity is also cherished.. .and it is fading. Fast. 

He has 11 current specialists. No big deal. But to see all of them at least twice a year. And at least 3 of them every 2-3 months.  And that's not mentioning any time he has to stay for being sick.

I want to die.

He is well over due for a follow up to that bronchoscopy he had last year. I keep putting off his urology appointment. Don't roll your eyes at me. That testicle doesn't matter. He's not having kids, ok. We all know it. It's not a surprise to me. 

If there could be more coordination in the appointments that would be helpful. But this doctor only sees patients on Monday, and this one on Thursday, and this one is booked until August. 

It's a nightmare. I know I sound really negative, but that's because I am. Yes, if you couldn't tell we had one of those appointments the other day. And we didn't even get to see the doctor! We had to leave before rush hour (which we hit in the city anyway) and after being there for over an hour we couldn't wait any longer. We did see a 'counselor' or something or other and she spent a good amount of time with us, but I didn't make the appointment with her. I made it with the doctor. For 2:30. And at 3:40 I still hadn't seen her. 

Just today I found out that one of the doctors Theodore sees comes to Annapolis twice a month. They asked me if that was more convenient. Ugh... YES!!! Why have we not known this for 2 years? WHY AM I THE ONLY ONE WORKED UP OVER THIS? WHY AM I THE ONLY ONE YELLING????

Okay, I do actually understand why you aren't yelling. But can you see my point? The frustration is at a boiling point. He is not our only child. I can't just take him willy nilly everywhere people want him to go whenever they want to see him. I refuse to keep answering the same questions over and over again.

And I still have to figure out a day to get him to the lab so we can see if we can stop these shots or not. Which would be super nice if we could, but it's just another thing to do. 

Alright, my rant is over for now. My point is that you may be seeing a kid for sale (or free) on Craigslist in the near future. I'd steer clear if I were you.      


1 comment:

  1. Love you lots. Don't feel ashamed about spreading those appointments out. A sane and happy you makes for the best care for Theodore - including any he might get anywhere else. You two are his bread and butter and you know him best. This post was funny, I have to say. Not that I'm laughing at your pain....xoxoxo